So, I’ve been spinning in place for about five months now. It’s miserable! Two weeks ago I told you my neurologist ran a bunch of tests (that all came back clear). Well, the next step was putting me in the hospital for observation, IV medications, and a spinal tap. Was really not excited about that last part.
It wasn’t so much that I was worried it would hurt, although I assumed it would. It’s that my little brother, David, died from leukemia and I sat with him for a lot of spinal taps. I was worried I wouldn’t be able to stop thinking about Dave and would cry so hard I wouldn’t be able to hold still.
I turned to my number one support system: humor. When the nurse said she was checking me in I told her I was there for the hot rock massage and pedicure. She laughed pretty hard and soon we were planning a full-on party. Happily, all of the staff, including the doctor had a great sense of humor and they had me laughing through the whole procedure. I keep getting a little sad for Dave every now and then, but who wouldn’t.
The reason for the spinal tap was to see if my spinal fluid was putting pressure on my brain. Guess what? IT WAS!! How crazy is that?!
The doctor was so happy to have found the issue. He came in and said there is a medication you take for a little while and then you are all better. Then he mentioned that the medication has sulfa in it.
Sulfa makes me bleed internally. So literally the cure could kill me. Le sigh. Can nothing be simple?!
He said that on occasion removing the spinal fluid removes the pressure so I should take a week at home and see how I do. Then follow up in a week. At least I get to go home right? Did I mention I HATE being in the hospital?
I left Friday the 9th but the only time the doc could see me was the next Tuesday. He prescribed me Topomax (another medication I’m allergic to, lol but not in an “OMG I’m going to die” way). He wants me to follow up in a month. I will probably go back sooner. I’m crazy dizzy and nauseated. It’s not all day every day but it’s about half or more of every day. I spend most of my time lying in the dark praying for death. Just kidding, I don’t pray. 😉
So, that’s me. I have been able to work out how to get things done in the short time spans that I feel well. My biggest worry is that I will still be dizzy like this in April when I go to France for my writer’s retreat.
Thanks for all the well wishes!! I really want to write about Black History Month and stop having to do updates on spinning. Here’s hoping next week goes better!